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Dr. Drottar`s Story and Promising Morgellons Remedy

October 04, 2016

I am a physician who is disabled after a thirty-year history with Lyme disease and Morgellons. My symptoms first began in my 20’s. I am a life-long camper and have had tick bites several times, but never had a bullseye rash or any obvious acute Lyme illness. I developed knee problems as a very young adult, but the doctors called it “chondro-malacia patellae” and said it was probably related to a childhood fall with damage to my cartilage.

I began to develop skin lesions that came & went in my late 20’s. By age 36, in 1991, I developed multiple minor physical ailments, including depression. I was treated for depression, under various diagnostic names, with numerous medications (sometimes 3 types at a time) over the next 23 years, with variable response. By 2001 I had chronic fatigue, persistent skin lesions, severe depression, poor word & name recall, and periods of mental confusion (“brain fog.”).

It wasn’t until I began to have significant spatial disorientation, that my friend convinced me to have a Western Blot Lyme test done at IGenix Lab in Palo Alto, CA. I had to see Lyme specialists in CA, in order to get adequate treatment, because my doctors in Portland felt my test “did not meet CDC criteria of 5 positive bands,” so therefore this was simply a type of Munchausen’s disease-seeking.

I had aggressive Lyme treatments over the next several years, including 7 months of IV antibiotic therapy, however my Morgellons symptoms simply worsened during that time. I began to have the persistent sensation of crawlings with constant non-healing deep ulcerations, I had severe fatigue, endocrine dysfunction, delusions, and frequent brain fogs. I saw the fibers in several different forms. (I even had some extracted and analyzed by the local Naturopathic school. 

Some were composed of simple keratin or gluco-polysaccarides. I looked for answers everywhere. I used Chinese herbal medicine; I had acupuncture; I used specialty creams & ointments; I saw specialists of every type; I did numerous forms of physical & psychiatric treatments; I bandaged & treated my skin twice every day. I worked full-time on my recovery with very limited success. I was interviewed by our local TV station and spent a lot of time online communicating with other Morgellons sufferers.

http://www.personalconsult.com/articles/morgellonsmysterystory.html

In 2009, I began work with a new psychiatric nurse practitioner and we did some very beneficial therapy together. In 2010, I began seeing Dr. Steven Harris in Palo Alto, CA. I also joined a weight loss support program and lost 110 pounds over the next 2 years. I began to improve. The lesions lessened. The abnormal sensations stopped. The delusions and pain seemed like distant dreams finally.

The last medication that seemed to finally cure me was an anthelmintic medicine used in tropical countries, but controlled by the CDC here in the USA. They will only release it for use in BIOPSY-proven infections. I took the Diethylcarbazine 200 mg. twice every day for over 2 years.

It is available (without prescription) online from veterinary supply websites in Australia or Canada. It was used for heartworm prevention, but the dosing is too inconvenient. Fortunately, it has not been abandoned. I took this medicine until I had been symptom-free for at least 6 months. I have now been off it for over 3 years with NO recurrence. I have occasional skin rashes still, but no non-healing ulcerations. I have found that these seem to be related to a gluten allergy. I have been tested and show “anti-gliadin antibodies,” which document that this is a true intolerance.

I am off all psychiatric medications and treatment. I have found that regular outdoor exercise (gardening, walking, hiking) seems to cure any mood disorder, fatigue, or body aches. I am able to maintain a normal body weight now, although I must watch my food choices. I have residual cognitive impairments with poor short-term memory, and terrible recall of all proper nouns (names—any type of name!) However, that seems to make me pretty average for my current age group. ;-) I feel happy, free, and joyous! I am socially & physically more active than I have ever been. 

I am enjoying life more than I have since my very early adulthood. I hope that all of you who suffer either of these difficult illnesses will be able to search out the proper help to achieve your own cures. Never give up looking, hoping, and searching: you only have your whole life to “get it right.” 

-Beverly B. Drottar MD

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